ADVISORY BOARD

We are a small team of dedicated professionals with a wide range of skills and experience. We love helping patients live and breathe their best lives possible and we do it with passion, creativity, innovation and imagination.

Teresa Barnes

 

Chair, Advisory Board

 

Teresa Barnes is a non-profit executive, consultant, expert and advocate for pulmonary patients and researchers.  As Chair of the American Thoracic Society’s (ATS) Public Advisory Roundtable for an unprecedented five years, she was involved in all facets of patient engagement including inaugural Year of the Lung efforts.  Barnes has worked in the pulmonary non-profit space for more than 15 years and helped raise the profile of pulmonary disease via relationships with key opinion leaders, media and public relations, as well as via social media platforms and websites.  She is a prolific writer and editor for consumer and professional publications in both online and traditional media. 

Ms. Barnes has worked on and off Capitol Hill for 15 years advocating for increased pulmonary research funding, improved resources for patients and families, and for exponential improvement in patient engagement and patient-centered research efforts.  She developed and led innovative efforts for research progress by establishing the first scientific conferences and collaborations in fibrosis across organs, fibrosis across species and fibrosis and cancer. Barnes has experience as a TV and print journalist and medical device executive in corporate communications including public relations, marketing and advertising and investor relations as well as in press release and video press distribution via her work with an international newswire.  She holds a B.A. from the University of North Carolina at Chapel Hill School of Journalism.

 

Donna Frownfelter, PT, DPT, MA, CCS, RRT, FCCP

 

Member, Advisory Board

 

Dr. Donna Frownfelter is an internationally-recognized clinician, teacher, author, and consultant in the area of Cardiovascular and Pulmonary Physical Therapy. She is Board-Certified as a Cardiovascular and Pulmonary Clinical Specialist by the American Physical therapy Association (APTA) as well as a Registered Respiratory Care Practitioner. Her book, Cardiovascular and Pulmonary Physical Therapy: Evidence and Practice, is the primary text used in many Physical and Respiratory Therapy Programs.

 

Dr. Frownfelter has received many teaching awards and has presented at several APTA National Conventions, as well as many Continuing Education Courses. She has served two terms as the President of the Cardiovascular and Pulmonary Section of the APTA and was elected a Fellow of the American College of Chest Physicians, the only physical therapist to be granted that distinction. In June 2019, she was awarded the Catherine Worthingham Fellowship (FAPTA), the highest award the APTA presents to a member for service and professional achievements.

 

Charlene Marshall, Patient Advocate

 

Member, Advisory Board

 

While Charlene Marshall never imagined her young adult years being plagued with idiopathic pulmonary fibrosis (IPF), she’s committed to the advocacy efforts, patient wellness initiatives, online support groups and research studies that will hopefully one day bring an end to this disease that has changed her life since her own diagnosis in April 2016. Working full-time in the field of child and family therapy, Charlene Marshall has a natural interest in helping others. She admits that working full-time is getting harder as her lung disease worsens, but she’s found supporting others through this disease along with being involved with the PF community in general very therapeutic, and is looking forward to her new role as a board member for the Pulmonary Wellness Foundation. Charlene resides in Canada, and is passionate about non-profit work, along with spending time in her craft room, walking her dog and enjoys days on the beach with her family and friends. Holding both an Undergraduate degree social work and Master’s Degree in Family Therapy, Charlene is always looking for new ventures to stretch her thinking and learn new skills. While she wishes no one had to deal with IPF, and can’t wait for the day a cure is found; she thoroughly believes we’re stronger together and that collaboration is key in making the lives a little easier for patients and their families affected by IPF.